Depression

The last month or so I have written post after post in my head. Unfortunately I broke my wrist in two places in mid/late January so writing in my head is about how far they’ve got. I am finding it hard to do much typing with one hand, and I’m sore and tired a lot during the week after having been at work during the day.

This month has had it’s ups and downs. The new kitten is a perfect little ball of sweetness and has brought much joy to my life. He’s very cuddly and loving which is just what I’ve needed. The broken wrist has been quite a down and I’ve found it really difficult to cope with doing ordinary things like laundry, cooking and dishes. Thankfully Miss G (age 11) has done a lot of cooking but she’s not here 2 to 3 nights a week so I’ve been relying on takeaways, which has not been good for my bank account or my waist line.

I had been much more on track with my eating towards the end of last year. I managed to get in the right frame of mind and lose 21kg on optifast in 12 weeks September – December. Things slippped over Christmas and school holidays but I was getting back on track, and then i broke my wrist. My eating has completely fallen apart again, I’m bingeing on junk food like I used to and things feel out of control. That has a lot to do with my state of mind at the moment as much of the time I can recognise that I don’t even like or am not getting enjoyment out of what I’m eating but I’m doing it anyway.

In the past I’ve used being fat like a shield so I always have an excuse to not put myself out there or try. I also don’t like myself so it’s like a punishment as well, feeding myself stuff that I know makes me feel physically yuck, lets me blame myself for doing the “wrong thing” and has the effect of making me fat so I can push people away and have an excuse if they don’t like me.

At the moment I’m struggling with depressive thoughts and the eating is part of the hatred I feel for myself. I am having a lot of suicidal thoughts and these always come up to offer me a way out when things are feeling particularly bleak. I walked up some hills at our local regional park today and when I got to the top, instead of admiring the view I was contemplating throwing myself off the edge. Not that it would have been much of a drop, not enough to die at any rate, though more than enough to probably break both my ankles and sustain quite a lot of brusing.

It’s not the sort of thought normal people have, and it’s really hard to explain as I know I scare people when I start talking about these things. I have been hallucinating bodies again in the last few days (this is another one of my warning signs) and people really look at you strangely if you bring that up! How can you tell someone that when you feel like I do every time you get in your car you think about what it’s like to die of carbon monoxide poisioning? And that I know I can’t have alcohol at the moment because it lowers my defenses against doing something stupid and that only makes me want it more.

I am taking my normal preventive measures, not that I want to. I feel an odd lethargy about doing anything but once I get past the procrastination I do enjoy some things (skating, art, exercise). But as soon as I stop I feel terrible again. Its almost always worse afterwards even though in the moment I felt better. I’m not sure why that is. I kind of picture it like the dark cloud lifting momentarily and then descending again, once it does things feel darker than before.

I try not to think of the long term. Living with persistent treatment resistant depression means it comes back regularly and some bouts are worse than others. Sometimes its a flat patch for a few weeks, sometimes I’m in a hole for a few months. My breakdown 6 years ago brought me to my knees for a very long time. If I thought about it too much I might not want to go on trying, knowing the next bout is never far away. I don’t truly want to die, I just hate feeling like this.

Till next time.

Ka Kite

An update to my post on depression

I know I’ve already posted tonight but I really wanted to write an update to my depression post last week.

I have been having a really hard time in the last couple of weeks, first with stress and anxiety and now feeling depressed and being unwell with some sort of virus. Work has been hard for various reasons, I’ve had to take my cat to the vet, we have a problem with the hot water at home, my daughter has a virus causing a full body rash, she’s wet the bed every night…the list goes on. Shit happens in life, and it happens to all of us.

When I wrote my last post on depression I didn’t really think about who would read it or what your actions would be. All I wanted to do was give some insight into what being depressed looks like. That’s its not always the sterotype image of someone clutching their head in their hands and crying. I know I have friends out there who also stuggle, and one of my motivations is to make sure they know they are not alone. That no matter how together someone might look from the outside, we all have our own challenges.

I also find it incredibly hard to ask anyone for anything. One of the things that always gets said when there is general talk in the media or on social media about New Zealand’s terrible suicide rate (we are world number 1 for youth suicide – 16 young people per 100,000 die by suicide every year), is that we should make sure people know they can ask for help. Yes, by all means make sure they know there is help available, but making that leap to asking for it is something that I am only just begining to learn how to do, and I’m nearly 20 years older than some of those teens going through this.

I don’t know what the answer is, all I know is that I am grateful for the wonderful friends and family I have. Friends like Mrs W, who came over with lunch on Monday bearing a box of food, fruit and eggs so it wouldn’t matter if I couldn’t go to the supermarket. Or like the people who messaged me and asked how I was, and S who invited me on a bike ride. And my amazing Mum who delivered 3 meals worth of soup, plus scones and french bread for me. My Mum and my sister helped me do dishes and sort/fold/put away washing, my Mum tidied Little G’s room and my Dad cooked me dinner. One of Little G’s friend’s Mums has looked after her for me. I didn’t expect the help and support I received but I am incredibly grateful to all of you for your thoughtfulness.

Thank you, thank you, arohanui (much love)

Depression

This is the not the post I expected or even wanted to be writing tonight. In fact, I am halfway through writing on a completely different topic, which I had intentions of finishing tonight.

But here I am. And that’s because I’m struggling with my depression again. I knew it was coming. I could feel it in me waters (as Kath from ‘Kath and Kim’ used to say). It has a pattern which I can recognise now. Not necessarily do anything about, but recognise.

Over the last few weeks my anxiety has built up. Every time I feel my anxiety getting worse I wonder what brings it on and this time has been no exception. There are always events in my personal life, little and bigger things which seem to have a larger impact on me than they would on other people. That’s part of my BPD – limited ability to deal with the stressors of everyday life. I feel everything at 1000% so something that’s small to someone else is magnified for me. And those events buffet me back and forth like the strong wind toying with a small sailboat.

This time, as with all the other times, I started trying to shore myself up. Increasing the exercise, making sure I had books to read and an art project or two to keep myself occupied. I joined the gym because one of my theories was that high intensity exercise would help manage my need for endorphins, which is what was driving my cutting behaviour. 

My stress at work increased and my insomnia returned. I know what’s coming, I can feel it, I can almost see the black cloud about to engulf me. I can’t shake off the overwhelming, crushing, defeated feeling I have when I am not making head way with my work. I have so much on that I can’t prioritise effectively, and I know I’m not spending my energy in the right places. I should be able to handle things, I know what needs to be done and I’ve no urgent deadlines so no need to stress. But my anxiety is making me feel sick every time I think about meeting a client or picking up a file. I want to double check myself every time I make a decision but I am aware of time pressure – the more time something takes the more cost on the client’s bill. So I force myself to go with my instincts. I force myself to walk into each meeting with a smile on my face and pretend the confidence I wish I had.

Things get worse though. I know how important sleep is to my wellness. My basic wellness plan for when things are starting to get bad is eat good food, drink water, get exercise and get enough sleep. When these things start to fall that’s when I know the darkness is creeping over my last line of defence.

I go to bed on time. I cook nutritious dinners (though I do eat chocolate afterwards…). I make it to the gym four times a week. I am completely exhausted. But when I go to bed at night I lie there wide awake. Not thinking anything in particular, but not sleeping either. When I do fall asleep I roll around restlessly all night long, unable to get into a deep sleep. 

The less sleep I get the more cranky and depressive I am. Everything makes me want to yell and hit and stomp around, or put the covers back over my head. Sometimes both.
Slow driver? Cue road rage from me. Child not picking anything up or putting it away? Cue yelling from me about irresponsibility and how I should throw it all away. Someone makes a mistake? More rage from me about imbeciles who can’t engage their brains. I park too close to one side of the garage or the other? I’m an idiot who can’t get anything right. 

I went to the gym after work yesterday hoping the endorphins would kick in and I would feel slightly better, or at least tired enough for a deep sleep. All that happened was that I was too tired to go and get milk and bread, so we had nothing for breakfast this morning. 

The cupboards are bare because I haven’t done any grocery shopping. My child is a chronic bed wetter and there are piles of washed laundry on the floor in the lounge as they have fallen from the chair they were on. There is washing hanging on a clothes airer in the lounge and washing on another line in the garage. There’s more washing to be washed in a pile by the washing machine, and in a pile in the corner of the bedroom (just to be clear – everything with pee on it is washed every day – it’s the other stuff that piles up around it). My kitchen bench is full of dishes, the bin is full, the bathroom needs cleaning, the vacuuming needs doing and paperwork for the last two months is spilling out of the mail rack.

I am hiding from everyone and everything and all I wanted to do this morning was put the covers over my head and close my eyes. I have no desire to do anything. TV doesn’t interest me. I can’t be bothered reading or drawing. I don’t want to go to the gym or talk to anyone. Every day I get up and pretend to be a person. I slap on the face I show to the world which says “I’m doing ok” and I go to work.  

Then at night, when I am tired and my defences are down, thoughts like why bother and I’m no use to anyone creep in. Don’t get me wrong, I’m not suicidal. The depression is just asking me what the point in trying is. When I’m like this and life seems so endless and grey and hopeless, I can’t remember the feeling of happiness. Intellectually I know that I was, and it was only a few short weeks ago. But the memory of what that feels like is gone.

So one of the ways I try and remind myself is singing. When I am feeling happier I sing along to my favourite songs. I know it sounds odd, corny even. But my most reliable measure of depression is whether I am singing in the car. If my favourite songs come on and I don’t hum along or sing then I know I’m in deep. But I can remind myself what being happy is like by remembering when I have sung. Turning up the music and connecting to it by singing releases something in me.

This is another thing I have stumbled on to by accident but it is apparently used with dementia patients as our brains are hard wired to connect music with long term memory and deep emotional recall. You can read more about this here.

So, I wanted to share this with you all so you can get a sense of what depression can look like. And for those of you with depression, who are also struggling, you are not alone. 

The good thing about knowing this was coming was knowing that it will end. After the stress and the anxiety comes the depression, and then it will pass. That doesn’t make it any easier, or suck any less, but it will pass. Hold on till it does.

Kia Kaha

Chris Cornell, suicide and major depression

The death of Chris Cornell by suicide, and the subsequent discussion of his death in various forms of media, has had me thinking about my own major episodes of depression.

When I heard about Chris Cornell I was so incredibly sad. The man was a genius, and the Temple of the Dog song Hunger Strike (sung in duet with Eddie Vetter of Pearl Jam) is my favourite song of all time. Oddly enough, though I love most of Soundgarden and Audioslave’s music, it’s this song I most identify with. It’s all about staying true to yourself and what you are doing, regardless of sucess or money. And that there is really no way of having more than you need without taking from someone else that can’t really afford to give it to you. Interestingly, Temple of the Dog was a collaboration between artists who would go on to be in Pearl Jam, and Soundgarden, and was a tribute to their friend Andrew Wood who died of a heroin overdose in 1990. 

The lyrics of ‘Hunger Strike’ have been running through my head all day while I’ve been thinking about Chris and what frame of mind he must have been in. I know only too well what that pain is like, having suffered so terribly with suicidal depression myself. But I also feel so devastated for his wife, kids, family and friends, because I’ve been on that end of suicide as well. I know a number of men who have taken their lives, and I’ve witnessed what that does to people. You analyse every thought, every moment, every word spoken, to see if you can find the reason. You relentlessly ask yourself if you should have seen it, if you could have done more. Whether you would have been able to stop it.

The radio conversation I listened to this afternoon talked about how selfish Chris was to take his own life. Neither of the djs had experienced depression and had no idea how someone could feel that way and not be able to think of what it might do to the people around them. One of the djs made the comment that Chris had everything, money, talent, sucess, a family etc and how could he still be unhappy with all that going for him. That he should have used his kids as an anchor and remembered what it would do to them if he was to die that way.

Now, I know that not all people who die by suicide have depression. And maybe Chris wasn’t depressed, sometimes overdoses and accidents happen. But he has said enough in the past about the struggles of depression to imagine that it could have been that, and even if someone doesn’t look like they are struggling from the outside it doesn’t mean that they aren’t.

I have suffered from depression since the age of 10 or 11. I have had a number of major episodes, but the worst one by far started in 2013 and almost destroyed my life. By November of 2013 I was in such a mess that I couldn’t follow a TV program or read a book, I certainly couldn’t work. I sat and stared at the wall and wished I was dead. It was the most pain I’ve ever been in and I couldn’t get away from it. It was inside my head and all I could picture was that permanent solution to it, death.

The first time I remember wishing I could die I was 11. I’d been bullied on and off for several years, and something expensive of mine got broken and needed replacing. I felt ashamed and guilty and like I was a waste of space on earth who just caused hassle and cost money. I wanted to die to escape from those feelings. On and off all through my teens I had dark periods, but as I got older they got longer in length and I fell that much further.

This is one of the poems I wrote in 2000, when I was about 17:

Darkness decends
And I am sitting alone
Outside
In the cold, crisp air

The rain stings
My sodden skin
As I watch the brightly lit house
Secure people bustling
Like ants in it’s inards.

Warmth emits from it
But does not seem to 
Penetrate its walls.
It stands solid, fortress like
And unreachable.

I can see in
But they do not see out.
I shout until I am hoarse
My throat raw and bleeding
And still no one throws a glance
My way.

Then there is this one from 2001:

Can’t stop the voices in my head
The demons rising up
From the firy hell in the 
Dark depths of my mind,
And trying to pull me down.

I kick them off and 
Avert my thoughts from the 
Sweet killing pain of the knife.
Surely I can find something worth 
Living for
Something the shadows can’t touch
Which gives me some purpose.

The demons claw at my legs
Whisper thoughts of pain in my ears
And promise to free me from the 
Burdens of living life.

I can’t make them stop.
Don’t even know if I want to.
Maybe I should just give up
And refuse to live.
I don’t think anyone would even notice.

And that’s the thing about depression. It makes you feel like you are in this black cloud. You can’t see anything but the bleakness. Life feels pointless and futile and I find myself questioning why humans crawled out of the sea and evolved from chimps and what we were we supposed to gain from that? And why I am I here, in this house, marking time?

I try so hard to think positively and be kind to myself but sometimes depression is not something you can tackle just by doing those things or getting more sleep/exercise/eating better etc. I am on meds and have been since my breakdown in 2013. I resisted them for so long, feeling like if I took them it would be like I’d failed or I was admitting I needed help. But they do help, even if sometimes all that means is that the edge is taken off things a bit so I can ask for help.

Asking for help can seem like scaling a very high mountain. You know you need to climb it to be able to move forward. But saying the words “I’m scared and I need you” can be incredibly difficult. How do you tell someone you care about that you are thinking of taking your own life? It’s like saying them and their feelings don’t matter to you – that you are prepared to hurt them in the most final way possible to end your own pain. But I’ve also been in the position where I’ve told a professional and been lectured about “how can you even consider doing that?”, and “think of your child and your family”. It took several years not to feel violently ill every time I thought of that conversation. When I opened up to someone and was honest about how dark my thoughts were they were more freaked out by them than I was. Once that’s happened once or twice you learn not to be totally honest about what’s in your head for fear of upsetting them or causing them to reject you completely.

There’s been a number of times the pain in my head has been overwhelming and I’ve wanted to end my life. Sometimes I don’t sleep properly for weeks, I can’t go to sleep or I wake in the middle of the night and can’t get back to sleep. Or I have terrible nightmares which make me fear closing my eyes at night. I’ve had hallucinations where I’ve been out walking and seen bodies hanging from the branches of trees. Some days everything looks grey and all the colour and happiness and goodness has been sucked out of life. I can go for weeks being tormented by thoughts of being a terrible person, a bad parent, a fat lazy ugly bitch, remembering everthing people have said to me about looking or acting strange and the times in my life when I’ve been bullied. Sometimes the demands of working and the house and being a parent get on top of me and the smallest thing can send me spiralling into despair. At times like these the thoughts can be so loud in my brain that I can’t follow the plot of a TV program or movie, or read anything, because I can’t concentrate. Occasionally the only thing that’s stopped me from taking a handful of pills is imagining the horror of Little G finding me. I couldn’t do that to her. Not that I didn’t want to, but that I couldn’t ruin her life like that.
Its really hard to explain what goes through my head in that position – its kind of like ‘whats the point. I don’t want to live my life but I can’t leave, I can’t do that to my girl and to my family. I really don’t want to be here. All I can see is the struggle – the depression in my past and the struggle to dig myself out of the current episode. My life is never going to change, no body will ever love me. Can I face being alone forever. What the hell am I doing with my life’. And on and on and on it goes. 

You can see how I got to the point of self harming. When you mix underdeveloped coping skills with significant emotional disturbance like this, self harm by cutting relieved my pain without the final ‘solution’ of death that I craved. I was less conflicted by it. It released endorphins which helped ease emotional pain, allowing me to keep living. Not a healthy coping strategy at all but one which becomes slightly more understandable when you have some idea of the pain which causes the action.

And I guess this is the same type of behaviour that causes some people to drink and do drugs and engage in all sorts of other self harming behaviours. The trouble is that the more you use these ‘strategies’ to cope, the more you become addicted to them, and the stronger those pathways become in your brain.

Whatever killed Chris, whether it was depression or drugs or something else, the world is a slightly darker place without his musical genius in it. RIP Chris. May you find your peace. 
Just as an added note, if you are in crisis please please please tell someone
Lifeline – 0800 543 354
Suicide Crisis Helpline – 0508 828 865 
Healthline – 0800 611 116
Samaritans – 0800 726 666 
Go here and read it right to the end.

On BPD, anger and depression

Things haven’t been going too well for me mental health wise in the last couple of weeks. Having BPD makes it hard for me to control my emotions, and my highs and lows tend to be much greater. Couple that with a tendency towards depression, and an Aspie brain, and you can see why my mental health seems to be a roller coaster ride most of the time.


I refer to my lows as episodes, much like someone with bipolar probably would do. During a low I can be extremely depressed, suicidal, indulge in various self harming behaviours, angry, emotional, belligerent, argumentative, manipulative….you get the idea. It’s not pleasant for me or for anyone around me and it does a whole lot of damage to my life which I have to try and repair when I am well again. It’s also very frustrating for me, because often I am aware I am acting badly but lack the skills to do anything but react.

One of the things I have been struggling with most during this particular low is anger. Often having a low with strong anger as the dominant feeling means a depressive episode is on the way. This is because as the anger or rage causes me to do things that I regret, I start hating myself for being like this. This begins a cycle of thought about how I am not trying hard enough, people would be better off without me, I’m not good enough, I’m a horrible parent/family member/friend/person in general. Then leads on to thoughts of death and finally suicidal ideation. Occasionally I hallucinate if I get really emotionally fraught – I have gone for bush walks and thought I have seen bodies hanging in the trees. 

So the anger I have been feeling this time has scared me. I have had several severe major episodes in the last 3.5 years and every time it is a long hard journey to climb out of that hole and keep living. My daughter has been and continues to be my reason for living, for climbing out of bed every day even when things were at their worst. But returning to a place where you can see a future again and have a little hope takes a lot of hard work. Severe depression is unlike mild and moderate depression in that the traditional things that doctors recommend don’t work, at least initially. No matter how much exercise, good food, quality sleep, social connection etc you get, your whole life basically falls into a pit of doom and you become unable to do the most basic of things for yourself. At my worst I couldn’t read or watch TV because there was too much effort involved in concentrating and trying to understand the plot, and my ability to speak was severely impaired because I had trouble following conversation and forming opinion.

I think what I also find hard about anger as a dominant symptom of a low is that it makes me inclined to be extremely difficult to deal with as a patient. As much as I need help I will take offence to suggestions or instructions from my nursing case manager and my psychologist. I will feel like nothing anyone suggests is good enough and I will interpret attempts to help me as “people interfering” or them “telling me what to do”. I vocalise this opinion to the people involved and I have been effectively fired as a patient by several psychiatrists and one psychologist for becoming angry and verbally agressive in appointments (just to clarify – I’ve never hurt anyone, just damaged the patient/therapist relationship).

I am currently receiving DBT therapy for my BPD and have made huge improvement in a number of areas. But anger still remains one of the emotions I find hardest to control. 

For whatever reason, this morning I woke feeling better than I have done in a while. Work was busy but not as stressful as it usually is, and after work Little G and I went to a local swimming pool. We bumped into friends and she played with their girls while I chatted to the mums, then Little G and I swam laps together. After dinner her and I walked to the dairy for an ice cream and sat in the park to eat them. Her and I sat in companionable silence and I tried to just be in the moment, enjoying the last of the evening sun and the taste of the ice cream and the company of my child. I think my peace is slowly starting to return. I am hoping that I hit the bottom of the low and because I am getting better at resisting self harming urges and limiting angry outbursts, it hasn’t lasted as long as it normally would.

I’ll leave you with the lyrics from one of my favourite Six60 songs, and in their words “Ain’t it good to be alive?”  That might be a strange thing to say when I’ve just spent this post telling you the difficulties of mental illness, but I believe that I wouldn’t be the person I was if I was not forced to face these challenges.

SIX60 LYRICS

“Only To Be”

Only to be, I live in expectancy
No wonder it feels like this wasn’t meant for me
Though my mind is so confined
That there ain’t no point in reasoning,
Now that it’s clear to see,
It was all in front of me
And I’m right where I’m supposed to be

Yeah yea, I’ll live just turning pages
Yeah, well I know that it’s worth the ride
Ain’t it good to be alive?

So what will it be?
My dreams are my company
To lose what is me,
I follow the path I see.
My mind is so confined
That I don’t even know where to begin.
But it took me so long to find
That I can leave it all behind.
Cause I don’t got everything I’d ever need

Yeah yea, I’ll live just turning pages
Yeah, well I know that it’s worth the ride
Ain’t it good to be alive?

Cause only to be,
Was all that you’ve got from me
You told me it’s real,
And nothing comes easily.
Cause that was the truth, I was losing all my youth
To a world that’s fit for someone else

Yeah, I’ll live just turning pages
Yeah, well I know that it’s worth the ride
Yeah, I’ll live just turning pages, yeah
Yeah, but I know it was worth the ride
Ain’t it good to be alive?