Gender confusion

As I have mentioned on previous posts, I am currently going through the diagnostic process to confirm my ASD diagnosis. This involves a lot of examining who I am, how I respond to certain things, my thinking patterns, my sensory sensitivities and developmental history among other things. One of the questionnaires I have filled out as part of the diagnostic process is the GQ-ASC which is the girls questionnaire for autism spectrum conditions and has two slightly different variations – one for Girls 5-12 years and one for Girls 13-19 years. I completed both, and my parents completed both, and all four were given back to my psychologist.

The GQ-ASC is a new tool and was only published in February 2018. It’s still in pilot stage, but my psychologist wanted to use it in conjunction with the other screening tools to provide further information for my overall assessment. There’s some info about it and a link to the questionnaires here. It was an interesting exercise for me to fill it out, and it really made me think about what I was like as a child and a teenager. I often think I have very little memory of my childhood but what I’ve recently discovered is that I have little snapshots of memory – sometimes just thoughts or feelings, or a flash of a situation. These are often out of context. I may remember how I felt or what I was worried about but not why, or what else was happening (outside of what was in my head) at the time.

There were questions on whether you preferred to play with girls or boy’s toys as a child, and whether you preferred to play with girls or boys. I didn’t like girls toys or clothes, although I did like soft toys (stuffed animals/plush toys) and I had quite a few of them. I much preferred playing with cars, though outside activities were more my thing as far as I can remember – sport, tag, playground equipment, skateboards/rollerblades, swimming, climbing trees and riding bikes. If I was indoors I was often reading a book. But both my best friends were boys and I wasn’t interested in most of the traditional girls things, like dancing and dolls.

I do distinctly remember thinking about wanting to be a boy though, and questioning whether I would fit in better if I was a boy and whether people would like me better. I preferred boys clothes and many of my clothes, especially from mid childhood to mid/late teens) were actually purchased from a menswear shop. I wore sweat pants, jeans or shorts, a t-shirt and a sweat shirt or hoodie. No makeup, no nail polish, no jewelry, except for a watch. I did get my ears pierced at age 11 but the only time I’ve ever changed my earrings is when one fell out and I was forced to buy new ones (the same as the ones I already had!).

I don’t like makeup, as I can often smell it and the smell drives me crazy and I can feel it sitting on my skin. Lipstick is awful as I feel like I am super tuned in to the feeling of it being on my lips. I have the same problem with nail polish, though in the last year I have discovered that I can stand one layer of polish on my fingers for a few days if I have to (I have a 10 year old daughter who loves to do nails).

From about the age of 8 I thought about being a boy. I remember wishing to be a boy but I wasn’t aware of trans people at that stage so I didn’t think it would ever happen. I read about Joan of Arc and people like her, wearing men’s clothes and doing things like leading men into battle, and I wanted to be like her. At other times though I was quite happy to be a girl. I never really developed boobs so that wasn’t an issue for me, and I was mostly allowed to wear the clothes I wanted to wear and play with who I wanted to and do what I wanted to, so it wasn’t a day to day issue. My main problem was having to wear a skirt as school uniform, though I was lucky enough to be able to wear pants in winter for a lot of my school career. I remember feeling fortunate that I had not been born 50 or more years earlier, when my preferences would have been more of an issue.

When I was 11 and in my first year of intermediate I developed my first crush on a girl. I don’t think I was really aware of lesbians at that stage (this being the early 90’s) and I was really confused because I was still sometimes thinking I wanted to be a boy. I felt sick to my stomach whenever I saw her because I was so confused about how I felt, but I still kept seeking her out. She didn’t know I existed though and I don’t think I ever introduced myself. The following year I had moved on to a boy, not that I ever let him know about that either!

Over the years I have had crushes on both girls and boys, but the girl ones tend to make me feel guilty and sick to my stomach. I don’t know why as I wasn’t exposed to prejudices against gay people as I grew up, and one of the boys I was best friends with as a child is gay. I don’t have a problem with it. I think the sick feeling is confusion and uncertainty about who I am rather than feeling like there is something wrong with me.

One of the only times I have ever been certain about my ‘womaness’ is when I became a mother. The experience of being pregnant taught me that I could feel comfortable in being a woman and still keep the parts of me that dress in shorts and t-shirts, that don’t wear makeup or shop or drink wine or want to wear high heels. It’s like being a mother proved to me that I could do the ultimate ‘womanly’ thing and create life, even though I have failed to conform to all the other sterotypes of what a woman is.

In the last few years I have done a lot of reading about gender and sexuality, and how these things seem to exist on a continuum, and especially sexuality seems to be influenced by hormones released by the mother when she is pregnant. I think I have finally got to a place where I am happy to be the ‘tom-boy’ girl, rather than wanting to be an actual boy/man. And I can accept that what I feel about my gender is separate from whatever my sexuality might be. And that I don’t have to label my sexuality or make a decision about it. Its enough to just accept that I don’t know at this stage and that may or may not change during my lifetime. My aim is just to be open to whatever happens rather than trying to analyse it. There’s an article about this here which explains better than I could why sexual fluidity is different to being bisexual and what it means. Some food for thought.

Ka Kite

Diagnostic process

I have been feeling like I need to write for the last week or two but I have been putting it off because I have been unable to sort through the tangle of thoughts that are in my head. My mind feels like it is cluttered with so much going on but it can’t focus on any one thing. Part of that is going back to work after my injury, but part is also going through the diagnostic process for ASD and what that means in relation to my past and my future, and who I am as a person.

At the beginning of December I had an accident where I fell off some rocks (boulder) while holding a child, straight on to another large boulder. My leg got trapped in the space between the two large boulders and I hit my buttock and lower back directly on the rock surface without breaking my fall as I didn’t let go of the child I was holding. Unfortunately this accident led to a sprained ankle and knee, a severe hematoma stretching from lower back to upper thigh, various bruises and scrapes and a fractured spine. I spent three weeks in bed, including all through Christmas, and only went back to work on reduced hours after 12 weeks. I am four weeks in to my back to work plan now, with another week to go. Then I should be cleared for full time work again. I’m still in some pain, and still find sitting uncomfortable, but I had a cortisone injection in my spine earlier this week which seems to have helped.

All this time off, particularly the enforced bed rest, has given me a lot of time to think and reflect, to learn (mostly through pod casts as it was hard to lie in certain positions to read or watch TV) and to question. My psychologist and I had talked about ASD diagnosis for me in the past, but I had dismissed it for several reasons. I was scared that I would not get a diagnosis and the part of me that identifies with the autistic community would be squashed again. I was scared of digging in to my background, analyzing my personality and family relationships, examining who I am. I know this is what I am doing in therapy anyway, but the diagnostic process is a more intense look, particularly at childhood and particularly at what other people’s impressions of your development were. I didn’t want my fledgling identity destroyed by other people’s ideas of who I am. I have worked hard to try and figure out who I am and I felt the skeleton I had begun to flesh out might be crushed.

However….the more I thought and learned about personal identities of all types, psychological and neurobiological theory, history – world history as well as biography of all types of people, the more I wondered about who I am and what my personal history meant. I wanted to know. I wanted confirmation, almost permission, to view myself through the lense of autism. To reframe experiences and experience ‘ah-ha’ moments – that’s why that happened and that’s why I do that. I wanted to find my community and not feel so alone anymore.

And so the diagnostic progress began. Luckily I still had almost all of my old school reports and my Plunket book (Plunket book = child development record book) which my mum filled out until I was 9 or 10 plus a couple of sporadic updates. So those went to my psychologist. Then questionaires for me – AQ and EQ which I’d done before – and RAADS-R plus the PAI, MCMI-III and TSI-2. Some of these are aimed at autism diagnosis, some at personality, trauma or clinical syndromes. My parents then filled out the RQ and we both filled out some questionaires aimed at diagnosis of females with autism. All of the results so far have showed that I am well over the threshold for diagnosis with ASD.

Then it was on to the WAIS-IV which measures cognitive ability in specific domains of intelligence. This showed my areas of strength to be vocabulary, arithmetic, and general knowledge, and my main area of weakness to be digit span, followed by letter-number sequencing. From what I can gather this means my knowledge, verbal comprehension and expression are good, but my working memory, auditory processing and attention are not so good. Interestingly enough, apart from arithmetic, my strengths and weaknesses are the same as Little G’s.

Because this process has taken place over a series of weeks, and is not over yet (more information gathering, plus a developmental history appointment with my parents next week, I have been feeling rather worked up about whether I was going to receive a diagnosis and what all the test results were saying. Last week I was getting agitated towards the end of my session with my psychologist and he asked me why. I explained I was nervous about the testing and felt on edge, he said for him the ASD diagnosis was never in question, it was just that we needed to go through the process and gather all the evidence to support it. The relief that simple sentence gave me was unbelievable. But also ….there was a sadness I hadn’t expected. 

In the week or so since I have been doing a lot of thinking and re framing. I feel a little sad and sometimes a lot sad. Sometimes I feel like it explains all my weirdness and I can be free to be myself. But sometimes I just feel lonely and bereft and like nothing will ever get better because how can it when my brain wiring is what makes me different.

In my last session with my psychologist he gave me some further feedback from the MCMI-lll. The picture it paints is not pretty. Depressive, anxious, avoidant, aloof (schzoid), negativistic (passive-agressive), self defeating (masochistic) and extreme (borderline). Patterns of behavior I have adopted to make sense of my world and my experiences. Things I do or ways I act due to some of the things that have happened to me. These also make me feel very sad, and very defeated by life. But I understand more now about why I feel the way I do – ASD and sensory issues, plus what looks to me like some attachment problems, causing maladaptive behavioural patterns. I’ll admit, there are more maladaptive behaviours than I had imagined, and they confirm my picture of myself as someone damaged, broken, unworthy. But I guess knowing is the first step to improving my psychological state, and accepting myself as someone with autism. And in some ways it feels like validation for the shit that goes on in my head and my struggle to cope with “normal” life.

It feels like I am a long way from a place of peace but at least I can see there is a road now.

Ka Kite