Searching for Meaning

I have been off work for 3 months following an accident in early December where I fractured my spine, sprained my ankle and knee, and ended up with a severe hematoma from my lower back to my upper thigh. While I’ve been off work I’ve listened to a lot of pod casts on all sorts of topics, as especially initially it was one of the only things I could do while lying down that didn’t cause me discomfort. This has led to a lot of thinking and reflecting on my life and who I am, and what I want from being here. I feel like I am searching for something but I don’t know what it is which makes it very hard to find! It’s like there’s something floating around in the ether, just out of my view but every time I try to focus on it, it slips away.

One of the topics I have approached from many directions is the idea of meaning, and that if you focus on the meaning in life you are more likely to be happy. Happiness is a seductive concept for someone who spends a lot of time depressed so of course the idea that finding meaning can help you feel happier holds a lot of hope for me.

So what is meaning? To me, finding meaning is about finding purpose. Why am I here? What should I do with my life? Is there a point to anything I do? My brain, especially in depressed/low mood state often answers this question with ‘no’. That there is no point as my life is fleeting in the grand sweep of humanity, and within 4 generations (if I’m lucky, 2 or 3 if I’m not!) I will be all but forgotten. Mexican people believe that there are “three deaths” – the first when you physically die, the second when you are laid to rest, and the third when you are forgotten. If all of life is a march toward certain death, then what should that journey be filled with?

I have always been fascinated with the various religions and cultural beliefs surrounding death, and with death itself. I know I am not alone in this, my quick google search on just the word death brought up more than 3.3 billion results!  There is much written on the fear of death, and the glory of death, but I am more interested in how to be comfortable with the knowledge life is fleeting and that this doesn’t mean there is no point to being happy.

When I write this it seems obvious that we should live to be happy if life is fleeting. Which is what I understand the central tenant of hedonism to be – that if life is a flash in the pan of humanity then it should be lived to maximise pleasure and minimise pain. That self gratification is the only sensible purpose of a life that may be cut short at any minute. A ‘you only live once’ philosophy. So I explored the concept that I could live focusing on what would give me the most pleasure, only to ‘run in to’ my ethics and values, which were dictating to me that I could only be happy if I was not hurting anyone else (or at least minimising that pain) while pursuing my own ends.

So then I explored what it might look like to live your life devoted to a cause you believed passionately in. There are many examples of people like this, from ancient times forward. These people fascinate me and I admire a great many of them. What I found though is that you can be passionate about a cause and dedicate your life to it, and cause other people great pain at the same time. Some times people are so focused on achieving whatever it is they believe to be the greatest good that they are prepared to sacrifice a great deal to achieve their goal/s. Great dictators spring to mind here.

I read, listened and explored all sorts of events and ideologies from here. From the Crusades, to struggles for independence in various countries, socialism and communism, facism, the French and Russian revolutions, terrorism, the stolen generation, various wars, Vikings, the Underground Railroad, NZ history, Chinese dynasties, stories of shipwreck and tragedy and exploration….you get the idea. Anything I could get my hands on about the history of the world and it’s people I read and listened to. 

And I learned that life is a paradox. There is not one truth. All sorts of contradictory and utterly illogical points of view can exist at the same time, and be at least partly right from various perspectives. People view the same event from different angles, using their unique perspective to decide what is acceptable and not, to them. An individual’s perspective is influenced by biology and genetics and life experiences, but also culture, world events, religion, the pervading ideas and government of the time. Their genetics may cause them to be more or less interested, or more or less involved in events of their time, but sometimes there is just accident or coincidence, or being in the right (or wrong) place at the time when something impactful is happening.

So all this brings me back to me. What is my purpose? What do I believe in? For, as many revolutionaries as there are out there, there are just as many people like me struggling to make sense of it all.

I remembered listening to the hedonism podcast and the research I had done, months ago, on that ideology. For some reason it had stuck in my mind and of all the concepts and things I have learnt, that one continues to fascinate me. I’d also heard about a short, non controlled, study done where researchers gave participants a camera to record 10-12 photos over the space of a week of the things that gave their life meaning. And from that they discovered that where people were physically involved in the things that gave their life meaning (by taking pictures, as opposed to talking about them), there was a discernible increase in happiness levels. The reason this study interests me, and why I have related it to the theory of hedonism, is that when I think about the things that give my life meaning, these are also the things that bring me pleasure. 

At this stage I need to do more research on the items that bring my life meaning, as I’ve only been able to come up with a couple. I feel stuck on this issue, so I’m going to go back and do some more research all the different types of Hedonism (and surprisingly there are at least 7 types), and the related philosophies, to see if I can figure out meaning and it’s relation to me.

And I wonder – this is a passing thought at this stage – whether my attraction to the concept of Hedonism is due to my tendency to think in dichotomy, and push away any pain I feel as ‘bad’ using self harming behaviors……

Emo April 2002 – 3 Feb 2019

I’m struggling with my grief for Emo, although I know it’s early days yet. The first day was the hardest as everywhere I looked there were reminders that she wasn’t there. The empty food bowl, the water bowl in the bottom of the shower. No Emo in the kitchen while I’m cooking or making breakfast, meowing when I take the milk out of the fridge. No one following when I get the mail or sitting with me when I’m having my lunch or reading my book. Flashes of memories keep coming to me so I thought I’d record them while they are still so clear. It’s one of my greatest fears that I will forget. Not the love I had for her, but that the specifics of the memories will fade. Having had two grandparents with Alzheimers/dementia, and a cat, plus another grandparent in early stages of dementia, one of my worries is forgetting things. So I am mostly recording these for me, and in no particular order:

  • Her long long tail and big feet, which seemed out of all proportion to her kitten body when we brought her home.
  • One of her back paws/legs was perfectly half black and half ginger even though she was a tabby. Looking at her from behind it was almost like a line up a the middle, one side black and the other ginger.
  • She liked to climb on the clothes airier when she was a kitten – it looked like she was using it as a jungle gym.
  • She would snuggle up to my ex-husband B a lot as he spent a lot of time in bed.
  • Emo was an excellent hunter, and when she was younger she always brought in her latest catch and put it by my side of the bed.
  • If I got meat out to defrost and left it on the bench she would jump up and eat it out of the plastic. I had to put things on a plate in the microwave so that didn’t happen.
  • When she was a kitten she sat on my shoulder while I studied. When she got too old to sit on my shoulder she liked to sit on my knee or the desk. In the last year when I worked from home she sat on a cushion next to me, or on a blanket in the document destruction box.
  • We got a dog when she was about 8 or 9. She was terrified and ran away for 4 days. My heart broke and I took the dog back. I loved her too much to put her through being scared in her own home for my own reasons.
  • She was very gentle and tolerant. G loved to pick her up and cuddle her, and only after extreme amounts of this attention would she growl at G and flick her tail. She never once bit her, though G did get a few scratches for not obeying the warning growl.
  • The only time I ever saw her take an interest in the TV was when I watched “The Secret Life of Cats”. She sat close to the TV with her ears pricked up like she was watching. I was sure she must have seen or heard something she understood.
  • She was happy to be with us, and was very flexible around where that was. Due to various mental health issues in the last 5 years, and life stuff before that, G and I have spent periods of a week to 6 weeks staying at my Mum & Dad’s. She came along on these stays and never objected to having a new house temporarily. Her and my parent’s cat tolerated each other reasonably well and stayed out of each other’s way.
  • Emo handled car trips well and in recent years I never bothered with a box or cage to take her to the vet. I would just put her on a blanket in the front passenger seat next to me and she’d look out the window, and then settle on the seat or in the foot well.
  • At our last trip to the vets in June 18 I just held her wrapped in a blanket in the waiting room and she was quite calm. Wide eyed but never tried to get down or run away. Her heart beat a little faster but she was happy for me to hold her and comfort her.
  • Emo liked to climb on the roof of the Nissan Tiida I had, while it was parked in the garage and then up onto the storage shelf area. There was a box of out of season clothes that had a collapsed lip so she would sleep in it. Sometimes I would need to go out and put the garage door down, which would have meant she couldn’t get down, but she’d refuse to get down. A couple of times I was late for work because the cat wouldn’t climb down from her hiding spot!
  • If I left the windows down in the car she would climb in a curl up on the drivers seat, or occasionally in the back passenger foot well. When she was starting to get dementia she’d forget how to get back out of the car and I’d have to go and rescue her.
  • She liked to sit at the table with G and I for breakfast and dinner. She’d climb up on the chair next to me and sit waiting until I’d finished, and then switch table sides and sit next to G hopefully, waiting to see if she’d get scraps.
  • If there was a drawer left open, chances are Emo would climb into it. Open the wardrobe or shed and she’d go in. She loved to get into the airing cupboard and sit next to the hot water cylinder on the clean warm washing. She would even climb into kitchen cupboards and over all my pots and pans exploring.
  • When I gardened she would grab weeds or plants as they moved and want to play fight with me.
  • She loved to chase after the palm tree fronds that fell down. Especially when she was younger she was very playful and happy to play lots of chasing games with sticks and bits of plant, or her toys. As an older cat she would still like to chase after toys thrown in the air for her.
  • Pegs and towels were two of her favourite play things. She would pull pegs off the clothes airier so the clothes fell down, and throw the pegs up in the air and chase them and chew on them. Towels she liked to roll on and grab then play fight with her teeth and feet. Her feet looked like a kangaroo’s back legs when she was doing this kicking move on the towel with them.
  • Sometimes she forgot to put her tongue back in when she was giving herself a bath 🙂 she’d have this little pink bit of tongue poking out, it was so cute.
  • She would sometimes lick me if I’d been scratching under her chin or patting her just right. It was a little sign of affection when she was especially happy.
  • She loved to snuggle but she was not one for sitting on my knee. I move around a lot, and even in bed I don’t spend much time staying still. She would sit next to me on her blankie, or on the footstool in between my feet, but very rarely on my knee. 
  • She liked to sit on G’s knee though, and often G would cover herself in Emo’s blanket and sit crossed legged with Emo between her knees. It was G’s favourite way of stalling her bedtime – “I can’t move, the cat’s just sat down/got comfortable/will get upset”.
  • She had a particular place she liked to lie in my bed – always on the side of me closest to the edge of the bed. I often had to lie closer to the center of the bed so the cat could stretch out as she pushed me further away from the edge.
  • A lot of the time in the last couple of years she’d lie right up level with my head, sometimes with her head on my pillow or resting on my arm. In winter she liked to snuggle under the covers in the little crook between my tummy and legs when I was sleeping on my side.
  • In winter she’d go out to hunt in the night and come back to bed covered in dirt and paw at the covers to be let back under to warm up.
  • When she wanted to wake me up she’d tap on the wall with her claws just out enough to make a scratching sound without actually scratching the wall. That got me out of bed pretty quick. Or she’d tap on the covers of books next to the bed.
  • She loved the rustling noise of a plastic bag. If I had one on the floor in my room she’d spend ages playing with it, sometimes getting fully inside it.
  • Sometimes she was naughty and teased the neighbour’s dog by sitting right next to the fence just out of her reach. The dog would get worked up knowing she was there but just out of reach.
  • In the winter she liked me to open and close the doors for her constantly. She had a cat door, she just preferred the human door opener to do it 🙂
  • Often it seemed like you’d just let her out one door and then she’d run around the house to the other door and you’d have to get up again to let her in. Then she’d walk straight through and want to go out the other door again!
  • She was very good at letting me know if she wanted to go in or out. She would tap on the glass or the door and meow. Some of the doors don’t latch very well so she’d push against them and let herself through.
  • For the first three or four years of her life she couldn’t meow. She’d make the face but no noise would come out. It was bizzare. You’d look at her and know she was trying to communicate but no noise happened. She also didn’t purr during that time either. I don’t remember when this changed but she certainly didn’t have this problem in her later years!
  •  When she developed deafness and dementia it was the strange sounding high pitched yowling that alerted me to something being wrong. She started doing this really horrible yowl – at first it was only occasionally, then several times a week, and gradually got worse. It was like she was confused or couldn’t find something. At first she responded to you calling her name when she did it but later she stopped. 

I’m not really finished recording my memories and I’m sure I’ll think of more but for now I need to get some sleep. 

Ka Kite



A tribute to my cat Emo

Our much loved 16 year old cat Emo crossed the rainbow bridge this morning. I miss her so much already and keep expecting to see her in all her usual spots. I am devastated and feel like I’ve been punched in the gut. I know logically I made the right decision but the sadness is overwhelming. So much worse than I thought it would be, and I knew it would be bad.

Emo has had a couple of bad weeks and on Friday I had to make the decision to put her down, and I booked the appointment for today (Sunday). Yesterday (Saturday) she had a really bad morning, one of the worst she’s had. She wandered around agitated and upset, crying. We could hear her in the back yard and Little G went out to find her and bring her in – there’s no point calling her as she’d become completely deaf recently. Emo was up on the trampoline, which she used to do all the time but hasn’t for a while. She was stuck, lost, inside the safety netting, unable to find the door she’d come through. Even after G picked her up and brought her in she continued to wander and cry, and she was looking straight through us as though she had no idea who we were. I knew then that I had made the right choice. She was confused and distressed and it was so upsetting for all of us (me, G and the cat). 

However, after a few hours she settled a bit and the rest of the day she followed me from room to room, interested as always in what I was doing. G and I treated her to lots of pats and cuddles, milk (she loved milk but it was a rare treat) and some puree treats she loved. In the afternoon I brushed her which she loved and she purred and purred. Then I had G help me try and get some paw prints from her.

The paw prints were an absolute disaster. I used non toxic tempura paint and though she was initially relatively co-operative, I couldn’t get a clear print on the paper. Many of them were just paint splodges. Her patience ran out after a short time while G and I persevered, trying to get a good print. Then we discovered all three of us were stuck in the bathroom! We’d been having trouble with the bathroom door handle and while we were in there it latched and jammed. So after a bit of a kerfuffle G unlatched the security stay and I had to climb out the window.

Emo took it all in her stride, laying on the handtowel that had fallen on the floor and relaxing while G and I maneuvered ourselves. She was always happiest when she was with us, no matter what we were doing. My Dad came over and took the handle off and door jamb out and freed Emo and G. None of the paw prints are exactly perfect and many have bits of cat fur stuck to them, but they are from her and we will treasure them. It was certainly an experience I won’t forget.

Her usual wandering and crying at dinner time and into the evening didn’t manifest itself last night and we were able to enjoy cuddles with her on the couch. After a night spent cuddled up with me in my bed, I started to question whether we needed to let go of her so soon and was very close to cancelling. I mentioned this to Little G and she said something I thought was very wise – that she was upset a lot and very confused and was not going to get better. And that if we put it off today we would only be prolonging the decision, wondering if this week she was worse and we should do it now.

It was so hard to spend our last morning with her, knowing we were taking her to the vet soon to end her life. She had her normal breakfast, plus milk and a puree treat. Then my Mum arrived and I told her I wanted to back out, that I didn’t know if I could go through with it. She didn’t want to advise me on what to do but told me the vet would know what was right.

So Emo got into the cage with her favourite blanket of G’s and we drove to the vets. She was very quiet, no meows of distress at all. I expressed my concerns to the vet and she told me what Gabrielle had, that we would be back within a week to a month anyway, that Emo was declining and was experiencing significant distress. I couldn’t put her through another month of confusion and distress to spare me and G the pain of putting her down, and I felt that would also be unfair to G (age 10) as I had mentally prepared her (and myself for the death).

The vet nurse and vet were very kind. We had one last cuddle and then we were patting her as she lay on the blanket she loved of G’s. She was purring as she left this world.

My heart broke. I couldn’t believe she was gone just like that. I wanted to hold and cuddle her some more and tell her how sorry I was and that everything was going to be alright, but it was too late. I hope that her purring meant that she knew what was happening and she was trying to tell us it was ok. 

Coming home was awful. I expected to see her on the driveway, where she would wait for us and greet us when we got home. Or just inside the front door, where she often sat waiting. Or curled up on my bed in a patch of sunlight. But she wasn’t there. Everywhere I look I see signs of her. Her special blankie. Her second favourite blankie. The footstool she loved to curl up on. Her toys and her bowl. Her water bowl in the base of the shower. I keep expecting to hear her claws tapping on the toilet door and her meowing for me while I’m in there. Or her to jump into the airing cupboard when I open the door, as she loved to curl up by the hot water cylinder. I went to hang washing out and there was no Emo following behind me and scratching in the garden or curling up in the shade in the dirt while she waited for me. I sat on the couch and there was no Emo next to me. My heart breaks every time I expect her to be somewhere and she’s not there. I couldn’t eat lunch because every day for the last two months I have sat outside on my chair and she’s sat next to me while I’ve eaten, sometimes sharing yummy bits with me. 

We went through photos of her on the computer. Over the last two years I have taken a lot of photos of her. Partly because it’s easy on my iphone, the camera is always there. And partly because I started to sense our time with her was becoming limited and I wanted to capture every moment, every little quirk. She was at my side or G’s a lot of the time – I have so many pictures to treasure of her cuddled up to my dearest daughter purring away, and sitting next to me on the couch or at my desk. She sat on my knee at my desk many days over winter while I worked from home, or on her cushion or on a blanket in the document destruction basket. While I have been off work for 2 months on ACC she has kept me company, both in bed and at my feet while I’ve pottered around the house. 

She has been my best friend for such a long time that I can’t picture my life without her in it. I miss her so much. I am so grateful for the time we had but I am overwhelmed with the pain of losing her. She was cute and cuddly, gentle and quirky, emotional sometimes (especially in the last few years) and she loved being around us. She has comforted me through some of the toughest times in my life, and celebrated the best ones. She gave her love unconditionally and she displayed that love for me and my daughter in so many ways. She will be forever in my heart and I am so grateful to her for sharing our lives. I love her so much and I know G does too. Many tears have been shed already and I am sure there are more to come, though I am not sure she would appreciate that. I will hold on to that memory of her purring at the end and hope that she knew how much we loved her and how hard it was to let her go.

I love you my darling Momo. Go gently into the light and know that we will miss you and love you so much. 


Emo part 2

As I mentioned in my previous post, I feel like Emo and I grew up together. I got her when I was with my ex-husband, just after we’d moved in together. I was 20, navigating life as a extramural student and working part time. Emo and I spent lots of time together in those early years while I studied from home.

She used to sit on my shoulder, or on my knee while I worked. Every day when I left to walk to work she’d escape the house the minute I put the key in the door and run down the footpath after me – she wanted to come too! She would hide every time I turned around, and run away from me if I went back to catch her and take her home. Some days I’d have to put her back inside 3 or 4 times before she’d give up following. It must have looked so funny – me walking down the road with the cat stalking me and hiding every time I turned around. Me chasing the cat and putting her back, then trying to run away quickly before she escaped again.

When she was about 2 or 3 she got into a massive fight and ripped the side of her face open. Many stitches later (her ear to her chin) and it got infected as she kept slipping out of the cone of shame. That wound got recleaned and restitched twice, with the whole episode costing over $1,000 – and that was 13 years ago, and I was a poor student!

She slipped out of every collar I brought her and I gave up after I saw her pulling the 6th one off by hooking a low branch under it, pulling down on with her neck and backing out of it.

Emo was an amazing hunter, keeping me in regular supply of mice, birds and rats. Sometimes several in one night.

She adopted my sister when she moved in with us – and her footstool. E’s red footstool was her absolute favorite thing in the world and she’d sneakily wait till E got up from the couch and come running to claim the footstool, then refuse to move when E came back.

When she was 6 I had a baby and she wasn’t pleased in the slightest. She thought she deserved more attention than the baby did, and she didn’t like the noise the baby made. It didn’t take her long to work out how to use that to her advantage though. If I wasn’t feeding her fast enough or giving her enough love she’d go into the baby’s room and howl loudly right next to the cot – that sure got me running!

She grew to like and then to love Little G though, especially in the winter when Little G cozies up in bed early and Emo could go and join her. She would spend some nights going to bed with G and snuggling, then switching beds to me when I went to bed. Cuddling up to me under the sheets to get right to the warmth.

Emo has always been a velcro cat, glued to my side, always interested in what I was doing and keeping me company while I was doing it. She ‘helped’ with various gardening and DIY tasks, computer work, writing, reading, cleaning the car, even checking the mail. She sat in the bathroom every morning on my PJ’s while I had a shower, and she was with me every night when I checked the house was locked up. She would often come out of the house to say goodbye in the morning, and be waiting on the patio or the driveway most days when I got home. She would remind me every night about 10pm when it was time for bed, though she was quite happy to go back to sleep on the couch or the footstool if I wasn’t going.

A few years ago she lost her tail in a freak accident. She was following me as usual, while I got the bins in. I took them through the garage and opened the back door, and she sat in the doorway while I put them away out the back. There was a sudden gust of wind and the door blew shut on her tail. She screamed in a way I’ve never heard a cat scream and threw herself back against the door. I opened it and she ran away, returning hours later to creep under my covers with her tail a bloody mangled mess. She had to have half of it amputated, but true to form, she managed to escape out a narrow window only open about 15cm, despite the cone of shame on her head, then work the cone off and come back happy as larry.

Emo has comforted and commiserated with me, and celebrated with me, through my engagement and wedding, an Ironman, completion of my studies, 5 jobs, birth of my daughter, several deaths, divorce, multiple house moves (7 in 16 years I think?), and my breakdown episodes. Plus so much other stuff in between. She’s accompanied us to stay at my parents for periods of days, weeks or months when I’ve not been coping. She has seen me at my worst when I’ve been contemplating suicide, and sat beside me while I’ve cried. I couldn’t have asked for a better companion. She is one amazing cat and I will love her forever.


Emo part 1

My heart is breaking. My cat Emo will be gone very soon. I’ve had to make the difficult decision to put her to sleep. She’s 16 – born early 2003 – and is now completely deaf, blind in one eye, has arthritis and a heart murmur, and dementia. The last couple of years have been tough on her, and by extension myself and Little G. As she’s gone deaf and partially blind, and her dementia has worsened, she’s spent a lot of time howling and wandering around crying. We would find her in the corner of the shower (her water bowl is in the shower base) crying because she had forgotten how to get out. The constant howling, loudly and in a high pitched tone, was hard to ignore. And because she is deaf you have to go to where she is and touch her before she would stop. She’s done odd things like get in the shower while it was still running (and I was in there!). But lately things had been getting worse.

Emo’s always been a gentle cat. She’d bat you with a paw or bite without using her teeth if she was annoyed, but she had never properly bitten or scratched me. But now the dementia has progressed to a point where’s she’s bitten me three times in the last two months. Every time she looks very confused afterwards, and sad too, with her ears down. It’s very unlike her.

She has spent increasing amounts of time wandering and crying, but until not too long ago that was limited to inside the house. She seemed to be getting lost and calling out, or trying to find her way around. The last couple of weeks she’s been wandering and crying in the backyard, causing 3 neighbors in the last 10 days to remark on how upset she seems and how loud she is. 

Back in June I took her to the vet, hoping that there might be something fixable wrong with her. She’d been weeing in my daughters room on and off for quite some time, although I hadn’t realised how often because Little G was still wetting the bed so the room smelt like pee a lot. Emo also seemed to be drinking an awful lot and her eyes were runny plus one of them clearly had a cataract. The vet ran a whole lot of diagnostic tests, which is when I found out she had a heart murmur. Nothing could be done about any of the things that were wrong with her, they were aging related. I knew then that we were on the downhill slide and things might be ok for a while or she could go downhill quickly. 

We have been making the most of our time left since then. But recently all her symptoms have got worse. She is now completely deaf and gets quite a fright if I touch her while she’s sleeping. She snores. She is still weeing in my daughter’s room. The crying has got worse. She’s very unsteady on her feet, and often slips and falls when jumping on to the bed, or off it (though she can make it on to the kitchen bench when there’s meat left out apparently!!). Despite all that we could go on I think. What really tipped the scales was the periods of extreme agitation. She gets very confused and wanders around and around and around, howling and crying. When she looks at me it’s like she’s looking right through me, like she doesn’t recognise me. She’s clearly upset and confused and she wanders around slowly crying. She can’t seem to find any comfort, sit down stand up change positions. Wander in and out of each room and round in the garden outside. It is heartbreaking to watch as we can’t comfort her, she doesn’t know us and she doesn’t know what she wants. One of my neighbors has also mentioned to me how distressing it is – he thought it was a baby crying that no one was attending to.

I feel like I’ve got to make a decision that saves her from that distress. The physical stuff I can deal with, but to see her so highly agitated and confused makes my heart ache for her.

So tomorrow is the day. I don’t know if I can go through with it. I don’t know what I’m going to do without her. I don’t know if I’m making the right decision. It all hurts so damn much. I love that cat and I can’t imagine my life without her. 16 years – we’ve grown up together. Her and my daughter have grown up together. I just hope that ultimately I am saving her from further suffering.


Emo Part 2

Life admin, abandonment and loneliness

I’ve had some really up and down days recently. When you live with Borderline Personality Disorder life is very much like a rollercoaster at the best of times, but recently those lows have been very low. I’ve had days where the blackness has rolled in and I feel severely depressed and suicidal.

I have been pondering on my triggers and there’s been a number of things going on for me. One is that I feel overwhelmed by life and all the admin and appointments that never seem to end. The weekly grind of washing and cooking, dishes and supermarket shopping, housework and garden maintenance. I very quickly get overloaded. I lack the executive function to keep my house tidy or remember where I’ve put anything as I get distracted very easily, but a messy house also really stresses me out. Losing and forgetting stuff constantly is also really stressful. There are days when I don’t want to come home because the house is messy and I can’t seem to tidy it up. I can spend several hours “tidying” but still not have a clean and tidy house at the end as I tend to deviate off task and get really distracted. And the more I have going on in my head the less likely I am to be able to cope with the basic day-to-day and week-to-week tasks. This end of the year also seems to fill up quickly with my daughter’s school stuff, end of year events and birthdays so remembering our schedules and fitting everything in adds more pressure. And yes, I have a calendar with colour coded schedule, plus a note book of reminders, I make lists, I set alarms and reminders on my phone etc. Even with all this ‘help’ to remember things I still feel overwhelmed and anxious about having too much stuff on my plate.

One of the other things bothering me at the moment is that my nurse case manager left. I tend to get very attached to people and I have a really hard time letting go. This one hurts a bit as I thought she understood that so might have given me an opportunity for a bit more closure. She’s been my case manager for about 3 years and we’d had a really good appointment last time I saw her in September. She said she’d ring me in about a week or so as she was going to be away for a few days. And I didn’t hear from her and I kept thinking I’d ring but then thinking she might be busy and she said she’d ring so surely she was going to… At the beginning of November I rang her because I was having a really bad couple of days and wanted to arrange an appointment and she told me she’d resigned. I mentioned it to my psychologist and apparently he’d asked her to tell me but she’d forgotten and that was her last day so she’s gone. And I feel disappointed and upset. My head knows I was just another case to her and she told me herself straight up when I first met her that it was not her job to be my friend. I had just thought she might say goodbye in person and I feel abandoned. Not great for a person with BPD who struggles with feelings of abandonment most of the time anyway.

My psychologist and I were talking a bit about what I expected from a case manager and discussing options going forward. I mentioned that when I ring them I expect empathy and validation, not necessarily a solution to my problems. Having been through a modified version of DBT I have strategies in place which mean I get through most days mostly ok by myself. But every so often (once a month or so) I have a really really dark time and I need some extra help and that’s when I call. Often I get suggestions aimed more at what I’d imagine would help a depressed person, but not necessarily helpful in my situation. My psychologist asked me if I would ring more often if I did get the empathy and validation that I want. I told him that I wouldn’t for several reasons, one being that I absolutely hate asking for help, and another being that I hate using the phone lol. But also that I tend not to ask people for help (not just the services but friends and family as well) as I am conscious of not putting too much burden on any one person. 

I have been thinking about that question this week and whether he is right, would I reach out for help more often if that help was more likely to meet my expectations in that moment? Then I came across this post on The Mighty today and this bit sums up what I said to my psychologist last week 

but I also know loving someone with borderline personality disorder can be overwhelming – to say the least. It’s one thing to have a meltdown every couple of months, but it’s entirely different to live with a disorder as unpredictable and intense as BPD. To avoid “burdening” those around me, I tend to bottle these feelings, fearful of “overreacting” or pushing people away. I know most people won’t really understand, and I don’t want to bother my friends with my third crying spell this week.”

The Loneliness of Living with Borderline Personality Disorder

To me, that perfectly sums up why I try and keep my issues to myself on all but my very worst days. Because no matter how empathetic and understanding someone is, supporting a person with BPD is no picnic and I don’t want to wear people down or make them resent me. My psychologist is the “last man standing” so to speak of my team of professionals – my case manager having left and my psychiatrist resigned earlier this year (I’ve had locums the last two times) and I am conscious of not making myself too dependent on his help. I worry that he’ll leave like they did, or that he’ll get sick of me. 

Constantly having to decide how much of yourself to reveal to others is very tiring. During every interaction with other people I filter what I say, and I try and make sure I don’t come across as needy or dramatic or pessimistic or “spiky”/angry/difficult – all of which I have been told I am by others before. Then there is conversations where I could contribute something but it might reveal more about my mental state and how will that come across and will it make the other person uncomfortable. And then there is trying to sort out whether am I talking too much or being too opinionated? And understanding what other people are saying, in words and body language, which is sometimes just as difficult. Not to mention actually hearing people as filtering out background noise is hard for me and sometimes the I don’t hear all the words or my brain doesn’t get the message fast enough. 

I isolate myself, especially when I am depressed, which is not something I do on purpose. I enjoy being on my own, but its also a relief not to have to constantly monitor myself.  Communication is such a bit part of life as a human but also a massive source of stress for me as well. Sometimes it is easier to be alone, even if I am lonely.

Waving in the dark 

Kia Kaha

Feeling low

This is a bit of a poor me whinge, which I wouldn’t normally do but I am feeling really low at the moment.  Hopefully getting typing it will get it out of my head and end up being cathartic.

I just feel like I’m not getting anywhere, like everything is against me. I had planned to work on Sunday, I couldn’t log in to my client’s server as it was offline. I got up early Monday morning to get some work done and ended up with more of the same IT issues. I lost 3 more hours of work time.

I can’t concentrate or keep the house tidy or get myself to bed on time or remember anything. I just feel like somebody has taken my brain and left just an empty shell.

I spent 2 hours yesterday working on something that turned out to be my misunderstanding, and when I started work today I found another mistake I’d made yesterday and had to take time to fix it all up.

I washed G’s sheets and mattress protector on the weekend and hung all her blankets out to air in the sun. Made the bed last night and she wet it. So the first thing I had to do this morning was wash the sheets and mattress protector, the same ones I did on the weekend. It’s so frustrating. She’s 9 and she is getting better at not wetting at night. I have to keep reminding myself that this time last year she was wetting every single night so once every second week is a big improvement. But still so frustrating.

Then she pulled out her shoes from the school trip yesterday and they were caked in mud. So I had to wash them and it’s stormy/raining today and predicted to tomorrow as well so they’ll take several days to dry.

Got to my lunch break today and I opened the connecting door between the garage and the house and a blackbird flew into the house. It likes to sneak into the garage and eat the biscuits out of the cat’s bowl (garage door was open) and I must have startled it. It flew through the lounge leaving a trail of shit on the carpet and walls. Then I spent a while trying to coax it out the sliding door. So my lunch break was spent cleaning bird shit off the inside of my house.

I’ve been trying to set up my own business as an accountant but if I want to file tax returns on my client’s behalves then I need to become a tax agent. That means that instead of having to file a tax return in July, people have till the following March to file. To be a tax agent you have to have at least 10 people signed up who need tax returns done. It’s taken me a while to get there as convincing people to sign up with me when I’m not a tax agent and don’t have that extension of time till March hasn’t been easy. I can’t properly run my business without tax agent status, but getting it is challenging because of the minimum client requirement.

I finally got to the 10 client threshold and applied a few weeks ago. IRD rang this morning and said they don’t want to accept two of my people as they may not have to file tax returns this year (individuals don’t have to file tax returns in this country except in certain circumstances). I think (hope) I have convinced the person I spoke to from IRD that I have other clients lined up to sign with me (not a lie, I have at least 2 more, with a possibility of more) as soon as tax agency is sorted. But again I feel so frustrated that I can’t advertise and get clients till I have it but the IRD won’t give it to me unless I have clients.

I’ve got lists a mile long of things to do but things keep popping up and then I spend all my time fire fighting instead of working through the list. I have this weird dichotomy where my brain feels like I’m on overdrive but I also feel like I’m moving through lead. Sigh. Must get back to work I guess.

Musings

I do not tolerate this low mood well. First I want to know what’s causing it, what can be done, how to fix myself. I am motivated at first. I keep busy. I read a lot and go to bed on time and get up on time. The fog deepens and my enjoyment seeps away. I make more effort to spot beauty in every day moments, notice the lone white rose growing on the otherwise barren roadside rose bush, the bird song, the things that make me smile. But each lift is brief, and bittersweet. Like patches of colour on a black and white photo. I feel like I’m missing something. The theories I’ve read should fit together in some way but, the puzzle has been tipped on its end and I can’t see the picture. I feel my failure to slot this together keenly. I would just get better if I tried harder, thought more, was smarter and nicer and all the ‘ers’ that aren’t me. 

Perhaps the irony is that I know the harder I try the less likely I am to succeed. The trying puts pressure on me to find the right response. I analyse and overthink instead of using my gut. Last week I had some flow, not a lot, just small patches where I had confidence in myself and trusted my innate creativity to come up with the right path. But knowing it was there makes me push for it, which in turn makes it slip out of my grasp. My brain goes round and round, percolating on ideas and theories of how to solve my chronic health issues, my mental health problems, deal with my ASD and my child’s. As I twist the ideas, trying to pull them together with a common thread, my brain works harder and harder. 
I am started to feel pelted with ideas. I could start this project, do this painting, build this shelf, tidy this up, move this here, get rid of that and buy this. Is this healthy? Am I producing too much waste? Is my heart ok? Is my child doing ok at school? Am I lonely? Will I ever be able to buy a house? Do I want to? Should I buy new socks or would that be wasteful if my other ones don’t have holes but are uncomfortable? Where’s the best place to get socks?…. and on and on about every topic. I feel overwhelmed and then suddenly unable to make even small choices, about what to wear and eat and when to go to bed. And suddenly I’m back to the beginning where I’m not getting enough sleep or exercise or taking care of myself or my house. Then I have to pull it back and start again. Find the motivation to go to bed early and practice my self care. 

Underlying all that is a pervading sense of failure each time the cycle repeats. This time I’ll be consistent. This time I’ll do better. I’ll make sure I don’t fail. And the ever present thoughts of what the hell is wrong with me that I can’t even sustain the most basic things for longer than a week. 

Communication

I’ve been thinking a lot recently about social media and social contact in general. I give myself quite a hard time as I don’t respond to messages or initiate contact much. I can see I have an email/facebook post/message/text etc but I often avoid reading them or responding. Even when I really care about the other person. And I am hopeless at initiating contact. I exist in my own little world quite happily. It’s not that I don’t like other people or want friends, or that I don’t care, it’s just that I find socialness really hard. Other people’s emotions affect me, conversations and thinking about how to respond are hard work, and I am a real introvert, probably bordering on anti-social. 


I also have a really hard time picturing people’s faces and remembering what they look like. I suspect this is related to my ASD tendency to avoid eye contact. I often look past people or in their general direction rather than at them. And because I can’t see much out of my left eye, if they sit on that side of me all I get is a general impression of them anyway unless I turn my head so my right eye sees them. But even remembering my own family, my daughter, my parents etc is hard for me. I know people’s hair colours, and I can usually pick if they’ve had a haircut. But facial features are hard for me to pull together in my head. My memory of people is usually with blank faces, sometimes with hair. General colours are there, but I can’t picture certain features. And interpreting faces and expressions is not my strong point at all. There’s some new research being done around this and the role of what’s called the fusiform face area in recognising and remembering faces. This article and this article are particularly interesting. 


When I was a teenager, my dream when I grew up was to be a hermit. Preferably living on a remote property in the Coromandel where I wouldn’t have to see anyone and I was a long way from anything except a good beach so I could surf as much as I wanted. I had no desire to have anything except peace and quiet. I still have that dream, though owning a piece of property on the Coromandel anywhere near a beach is probably way above my pay grade!


I carry a lot of guilt about not responding to people and messages. Right now I am avoiding responding to two text messages, two Messenger messages, a Linkedin message and at least one email. And that’s just social stuff from the last two days. There’s other messages I haven’t responded to from weeks back. I’m also avoiding cancelling an appointment, emailing G’s teacher, emailing an invoice (that one is a must do, I want to be paid!), emailing a potential client, making a doctors appointment…. the list goes on and on. The social messages are important to me, and they are all from people I like and care about. But I have a lot of trouble thinking of how to respond. Some of them want commitments from me, like making a time to catch up. Others just require a response to a comment or question. And the general household stuff just needs doing! But communication is often beyond me.

I think that would surprise a lot of people that know me. It’s probably no secret that I am slow to respond to messages, but I feel like my level of procrastination is higher than most of my friends would guess. Maybe not my family though, they know how crap I am at communication! 

One of the things that they expect you to be able to do when you are a psychiatric outpatient is talk to people and ask for help. I however am an expert at avoiding phone calls at all costs. I find it incredibly difficult even when I am not in distress to pick up the phone and ask anyone anything. Add mental distress to that and I am almost a lost cause. Because of that, when I am unwell I don’t get the support I need from my case worker and that often makes me frustrated and angry. I don’t know how to communicate in a way that will achieve what I need. If I can force myself to ring I never manage to put across what I am feeling, despite rehearsing what I could say in my head dozens of times, sometimes for days before I work up the courage to pick up the phone.

Compounding my distress, often when I am mentally unwell my ability to put words together in a way that makes sense is often diminished. Sometimes my speech is really fast, or really slow and hesitant. Sometimes I stutter and stumble over words. Sometimes I get them mixed up and say day when I mean night, or yesterday when I mean tomorrow. Or I can’t remember the words at all. Sitting there, knowing what you want to say but being unable to find the words to communicate so that you are understood, is really difficult.       


When you have BPD and you get frustrated or angry the emotions often come on suddenly, and very strongly. I can go from upset to intolerably angry in about 2 seconds flat, and that will make me do things I regret later. I have shouted at various mental health professionals, been rude and snarky to people, become mute when things haven’t gone my way, point blank refused to do certain things asked of me, argued with people, stormed out of meetings, been fired as a patient by a psychologist and 2 psychiatrists, and generally thrown temper tantrums. I am not an easy patient to deal with and I’m not proud of that. All of these things are tied up in my inability to communicate with people, and my extreme sensitivity to anything that could be perceived as an insult or criticism. And once I am angry I tend to give in the the fury and it takes a while to come down from that. 

I think my social behavior, my difficulty in communicating and my inability to remember faces or read them very well are all tied in to ASD. My current theory is that my ASD produced many situations that I did not have the ability to cope with and caused me confusion and overwhelm. I didn’t have a diagnosis, didn’t understand why I was different and thought there must be major flaws in my personality. On top of that I was overwhelmed and confused much of the time. This, along with some less than ideal circumstances and trauma in my childhood and teens, caused me to develop dysfunctional coping skills which in tern has led to BPD. I also wonder whether the fact that I strongly believed my personality was flawed led me to try and suppress it or get rid of it, leading to the unstable sense of self that is so central to a BPD diagnosis.

I am not sure why it matters to me how I have ended up with the conditions I have. On reflection tonight I feel like if I can somehow find the connection between all of these things, these odd bits of me, then I can get a handle on “how to be me”. Like trying to unravel a complex knot, where you feel like if you can loosen it enough you’ll be able to find the end of the string and it will all just fall undone. I think I have this hope that one day that will happen and I will magically just know how to cope with my life.

An update

So, I haven’t posted for about 6 months now. There’s been a lot going on, and one of the things I have had to consider is how much I should be sharing with other people and why I am sharing it. Some of the issues I have also affect other people and it’s hard to know how open to be, but also difficult sometimes to write about things when you have to leave out the bits that might involve other people.

December was a really difficult month. I traditionally don’t cope well around Christmas time anyway, and 2017 had some family and financial pressure, plus my medication had been decreased which I did not react well to.

My new (at the time) psychiatrist had said that he was of the opinion that I was heavily over-medicated and he wanted to decrease my Venlafaxine dose. I was all for trying this as my ultimate aim is to come off meds altogether as I don’t believe they are helpful long term for people like me with BPD. I’d already started decreasing my dose over the previous year with the help of my last psychiatrist, going from 375mg down to 225mg over about a year or so. With my new plan I was to drop down to basically nothing over about 3 or 4 months. 

I’d had terrible withdrawal symptoms with all my previous decreases but managed to get through them. Unfortunately, this time the plan called for dropping by one dose (37.5mg)  and then after a few weeks, dropping by another dose, and so on, and my body couldn’t cope by the second decrease. I went into withdrawal which for me always starts with feeling like I am getting some kind of virus. This was followed by brain shocks, headaches, nausea, and dizziness. This was on top of worse mood swings than normal and higher levels of suicidal ideation. I tend to have rages where I know I am being completely irrational but I can’t seem to calm down after being triggered. 

My brain often goes AWOL when my meds have been changed, and I was also having trouble stringing a coherent thought together and holding a conversation. Not helpful when you are working and trying to communicate with clients. 

After discussing my issues with the team at community mental health (CMH) my dose was temporarily increased for a few weeks till I re-stabilized, then it was time to try dropping it again. I was pretty worried by this point, given my history, but agreed to try and see what happened. It was terrible timing as the first term of the school year was starting, but there’s never a good time to be feeling rubbish so I just had to hope I’d be ok.

A few days in and I was feeling ok, then the onset of the virus type symptoms. By day 5 I couldn’t get out of bed and all I wanted was to die. I raged at my daughter’s new teacher (terrible first impression) and generally acted like a bear with a sore head, lashing out at anyone who got in my way.

I got pretty desperate and ended up calling my case manager at CMH and asking for a med increase again. Not what I wanted but I just didn’t have the strength to deal with all the withdrawal symptoms.

So that was December – February. 

One of the things that struck me over this time is that people generally have a perception that my mental illness is a ‘fixable’ thing. Over Christmas time I bumped into a number of people I haven’t seen for a while, and as you do, you ask each other how you are. Now I never know how to respond to that question at the best of times, because does the person genuinely want to know or is the ‘I’m fine’ response expected? I usually opt for ‘getting there slowly’, or ‘not great’ as they seem slightly more honest than ‘I’m fine’. And the comments I get are almost always along the lines of ‘But you’re better now though aren’t you?’, ‘I thought you’d recovered from your depression, you’re back at work’, ‘you look/sound happy’.

I find this incredibly frustrating though I know it’s always meant well. BPD is not something you recover from, and yes I was severely depressed and I have recovered from a major depressive episode but I am still unwell. BPD is a serious mental illness that has a significant risk of death by suicide. 70% of people with BPD will have at least one suicide attempt and about 10% of people with BPD die by suicide (50 times the risk of the general population). I often look well and/or happy because I can be happy. BPD is characterized by emotional instability and pervasive instability in mood, affecting all aspects of my life. My life is a never ending rollercoaster of emotion, where I can be happy one minute and suicidal the next.

I don’t blame anyone for not knowing or understanding my condition, I just find it a little frustrating that most of the efforts in awareness campaigns tend to be around depression and anxiety. 

And I guess that brings me back to my reason for sharing some of the things I do. I want people to know what living with BPD is like. I don’t think having it makes me a bad person, but I am very sensitive, emotional and impulsive which can lead to chaos in my life and the lives of those around me. More on that another day.

Ka Kite Ano